Below are links to various publicly available resources that are relevant to clinicians and academics working in the area of pediatric pain.
- ChildKind International Resource Library
- International Directory of Pediatric Chronic Pain Programs
- Pediatric Intensive Pain Rehabilitation Programs- COVID-19 Updates
- SickKids Online Paediatric Pain Curriculum
- Pediadol: French-language resources
- German Pediatric Pain Centre
- SKIP, Solutions for Kids in Pain
- PubMed – email alerts
There are more resources available to IASP members on the IASP Global Year website (open to the public) and new groupsite (requires IASP login). This groupsite has as a purpose to bring people together and make things happen through a private meeting place that features discussion forums, member profiles, photo gallery and file storage to share relevant resources. We encourage you to upload your photo, complete your profile and participate! To log in to the IASP Pain in Childhood SIG groupsite, follow the link above or the steps below:
- Login into your IASP account
- Click on “My Account”
- Scroll down to “My Group Memberships”
- Click on your listed SIG – “Pain in Childhood”
The ChildKind International Resource Library provides an overview and access to a wide range of resources (i.e., policies, protocols, educational resources and guidelines) on all aspects of paediatric pain assessment and management. This library is easy to search, allowing you to search based on category (e.g., assessment, non-pharmacological management, education, …), type of document, target population (from neonate to adolescents), intended users (i.e. professional, child, caregiver), type of pain or organisation (e.g., educational institution, hospital, outpatient clinic, professional association). Once you found a relevant resource, easy access is provided through a link to the original document.
The list of dedicated pediatric chronic pain programs in the United States and Canada has been developed and maintained since 2012 by Tonya Palermo, PhD under the Pain in Infants, Children and Adolescents Special Interest Group (SIG) of the American Pain Society. Annually, information is solicited from pediatric pain programs via the Pediatric-Pain Mailing List to make program updates and to add new programs. Please note that information is not verified for accuracy. As of 2019-08-07, this resource is being transitioned to the International Association for the Study of Pain SIG on Pain in Childhood.
The list was most recently updated on 2020-02-04 and for the first time covers international programs, including programs in other countries outside the USA and Canada.
Copyright and Permission to use
Copyright © 2020, Tonya Palermo, PhD
The directory is intended for use in referral for clinical services, education, and research collaboration. It must not be used for commercial purposes such as marketing products or services.
The directory must not be copied, altered, or reposted. Permission is granted to link to the directory via PedPainClinicList_2020-v2.
Address correspondence to Tonya Palermo, PhD: Tonya.Palermo [at] seattlechildrens.org
This document was developed to supplement the international directory with information regarding the status and program changes to Pediatric Intensive Pain Rehabilitation Programs. This information was updated on 2020-09-18 and includes program status (e.g. open, not open), and any relevant program changes as of that date. Please note that this information is anticipated to change in the coming months, and is designed to temporarily be posted to facilitate clinical referrals.
The SickKids Online Paediatric pain Curriculum is aimed at healthcare professionals and encompasses 10 online, interactive ànd free modules providing you with a comprehensive insight into paediatric pain. The curriculum covers a wide range of general topics, such as the neurobiology of pain, developmental considerations, epidemiology, assessment, pharmacological and non-pharmacological treatment options, and ethical considerations, but also includes modules focusing on specific types of pain, such acute pain, chronic pain and pain in palliative care settings. You have the choice to complete the complete curriculum in order of presentation or watch individual modules that peak your interest.
Pediadol is a French-speaking group of experts composed of doctors and nurses who are specialists in childhood and pain and who are highly involved in improving the management of children’s pain. This group meets every month and organizes an annual conference entitled “La douleur de l’enfant, quelles réponses?” with a plenary session and training workshops, produces the site and publishes information and training documents. This group has existed for more than 30 years and has produced a lot of data.
The website www.pediadol.org has just been redesigned. It is open access. The members of this society collectively developed the content of this site, synthesizing evidence-based data and good care practices. Protocols, practical tools, child pain assessment scales, team experiences, videos… are available for all. Acute and procedural pain are particularly detailed.
Since 1991, Pediadol annually organises the only French congress dedicated specifically to child pain. It brings together about a thousand French-speaking professionals in Paris at the Palais de l’Unesco and is an opportunity for exchanges and sharing of knowledge and practices.
The group is very committed to the dissemination of knowledge and good practice in the ethical spirit of paediatric care and is independent of the pharmaceutical industry.
The German Pediatric Pain Centre collates information about pain, both acute and chronic pain, for children, adolescents, parents and health care professionals. Information and resources are available in both German and English and vary from key facts on various pain conditions (e.g., abdominal pain, headaches) and management of these conditions to patient stories to videos explaining pediatric pain experiences.
Solutions for Kids in Pain (SKIP) is a new Networks of Centres of Excellence (NCE) knowledge mobilization network based at Dalhousie University, Halifax, Nova Scotia and co-directed by Children’s Healthcare Canada in Ottawa, Ontario. SKIP is aimed at improving children’s pain management in Canada and around the world. SKIP brings together Canada’s world-renowned pediatric pain research community, front-line knowledge user organizations, and end beneficiaries (patients and caregivers). More than 100 Canadian and international partners have joined the SKIP Network to work together to put evidence‐based solutions to child pain into practice, including the Pain in Childhood SIG. You can also follow SKIP on social media at @kidsinpain using the hashtag #ItDoesntHaveToHurt!
PubMed – email alerts of new publications in your area of interest
It is possible in PubMed to set up email notifications that are tailored to inform you of new publications in your specific area of interest. To do so, follow the steps below:
- Sign in to PubMed using an existing account or register for an account to establish a new account.
- Perform the search for your specific area of interest (see below for an example search)
- Click the “Save Search” search link that appears near the top of the search results page and choose the settings for automated E-mail updates
Below is an example of a search that Dr. Carl von Baeyer has carefully developed and works well. It searches titles for pain or analgesia/analgesic AND variations of child or pediatric (note that all of the parentheses, brackets, and asterisks in the search filter are necessary):
(pain[Title] OR analg*[Title]) AND ((child*[Title]) OR (pediatr* OR paediatr*[Title]))